Virsaviya Borun is an 8 year old girl from Russia, that have her heart beat literally outside of her chest in a recent video, but what causes this to happen.

When Virsaviya Borun was born in Russia, doctors gave her a grim Prognosis. Her condition is known as Pentalogy of Cantrell. It stops the rib cage from growing, leaving the heart exposed, covered by only a thin layer of skin.

While 90 percent of babies with the condition die at birth, Virsaviya is beating the odds.

Her mom loves to share her incredible story on Social media.

Borun is originally from Russian but now lives in Florida, according to local news station NBC 6 in South Florida.

Borun and her mother came to the United States because a doctor at Boston Children's Hospital had agreed to treat her, but later made the decision not to perform Surgery because Borun had Hypertension in her Pulmonary artery, which carries blood from the heart to the Lung.

In 2015, Borun's mother started a fundraising campaign to raise money for her daughter's medical expenses, and raised more than $71,000.

Ectopia cordis is an extremely rare condition in which the heart develops outside of the chest in a growing Fetus. If the rib cage of a developing fetus does not form properly, the heart can develop outside of the body without the protection of skin, muscle, and bone.

A video, was uploaded to YouTube in September, showings a young girl laughing as her heart beats outside of her chest, with just a thin layer of skin protecting the vital organ. The girl appears to be Virsaviya Borun, an 8-year-old who was born with a rare condition called Pentalogy of Cantrell.

Pentalogy of Cantrell is an often-fatal disorder involving several birth defects in the chest and abdominal area, which can result in the heart being located just beneath a person's skin, as opposed to behind layers of bone, tissue and muscle. The disorder can include defects of the diaphragm (the muscle that separates the chest cavity from the abdomen and helps with breathing); the breastbone (sternum); the pericardium (the membrane that lines the heart); the abdominal wall and the heart itself, according to the National Organization for Rare Disorders (NORD).

The term "penta" in the condition's name comes from the Greek word for "five," because the disorder can include up to five Defect. However, most infants with the disorder do not have all five defects.

In the most severe form of Pentalogy of Cantrell, people are born with their heart completely or partially displaced outside of the thoracic cavity.

This Cavity is the chamber that typically holds the heart, and it is protected by the rib cage. The intestines and abdominal organs of such people can also partially protrude outside their body through the belly button.